Long term Care looms large for an estimated 70% of 65+ seniors, and is a key factor for millions of families challenged by the impact of a severe injury, chronic illness, or life-long disability that makes independent living difficult for loved ones who require additional support. Medicare, Medicaid, the VA and other local and community organizations may provide helpful benefits and services. Long Term Care is far more than just another insurance policy to help underwrite these prolonged costs. Who needs it? How much? Who provides it? Location may be the most significant element in the equation. The official federal website gives a much-needed broad overview. Click here for Long Term Care Information, Tools, Resources and Links to begin your research.
Using the Internet as a Long-Distance Caregiving Tool
Information overload can deter even the most experienced caregiver seeking education, information and resources to help a loved one. For that reason, our recommended links section is relatively short -- limited to websites we believe offer reliable and current content. As a general guideline, here are tips to keep in mind:
Create a "Hot List" of Useful Web addresses
When you bookmark a website and check back at a later time, be sure to press the "refresh" button for updated information on your computer.
Links to Third-Party Web Sites - A Qualified Disclaimer
CFAD links to many third-party Web sites. These links do not imply endorsement by CFAD. Since they are not under our control, CFAD is not responsible for the content of these linked sites, nor the opinions expressed elsewhere. However, we have tried to select content that help may you on your caregiving journey.
Click any category below to get started.
CAREGIVERSUPPORT AND ACCESS TO RESOURCES
AARP Advice on Long Distance Caregiving essentially recaps all the What to do guidelines of our website: alzheimers.gov is a federal government website with a broad range of content from everything from treatment options, research, planning care and support for an estimated 15 million family caregivers who help manage Alzheimer's care, from near or far. The Alzheimer's Association offers a 24/7 helpline at 1.800.272.3900.
Family Caregiver Alliance
National Caregivers Library
Military OneSource is a comprehensive information and resource website with help for on everything relating to military personnel from balancing work and family issues to paying taxes. They maintain a telephone answering service to answer questions 24/7.
The new National Resource Directory (NRD) is an online tool for wounded, ill and injured Service Members, Veterans, their families and caregivers with those who support them. The Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration.
Benefits CheckUp Offers information on state and federal financial assistance programs for the disabled and elderly, links to Medicare coverage and housing options. Learn options to pay for prescription drugs, utility bills, and some health care.
Centers for Medicare and Medicaid Services, the official federal website, offers comprehensive long term care decision support tools. To compare hospitals, home health services, Nursing Homes, Dialysis Facilities, Doctors and Health Care plans go to the Medicare Website.
Aging and Disability Resource Centers - National network of local community aging agencies contains a wealth of information on services and programs, housing options and the complete range of community caregiving services and programs. Locate resources in your loved one's hometown.
Disability.Gov is a content-rich federal website with information regarding benefits and programs for the disabled.
Eldercare Locator may help you locate senior services nationwide. The database is not searchable, and does not include for-profit service providers. However, it does link to a local Area Agencies on Aging.
Home Health Compare offer guidance for selecting and comparing Medicare-approved Home Health Agencies. This is the official federal government list.
American Association of Daily Money Managers can help you find specific service providers if you need help organizing bill paying, tax preparation documents and medical insurance claims.
Find an Elder Lawyer through the directory of The National Academy of Elder Law Attorneys
Financial Planning Association offers a search engine to help located a certified financial planner. The National Association of Personal Financial Advisors (NAPFA) is an association of fee-only advisors, all of whom sell no product and work as fiduciaries for their clients. Click Glossary for a further explanation of financial caregiving services, including planning and money management.
Geriatric Career Managers
National Association of Senior Move Managers (NASMM)
National Guardianship Association offers valuable insight, should this be your option.
Aging Parents and Eldercare website contains a well-organized resource guide.
Jewish Home Lifecare is a Website that offers guidance on local resources from short term Rehabilitation to stay-at-home solutions to managing specific medical/aging conditions.
Long Term Care.Gov is a federal government website giving a broad overview on information, tools resources and links. A good starting place for research.
National Alliance for Caregiving
Today's Caregiver is a free weekly newsletter, access to support groups nationwide.
Well Spouse Association
Able Data is a comprehensive resource for the vast array of disability-related products and resources. It offers objective information on assisted technology and rehabilitation equipment.
ECare Diary is web-based service to help families and members of a care team manage appointments, track medications, organize documents, share calendars and coordinate care schedules.
Lotsa Helping Hands is a free private group calendar that helps caregivers, friends, family members and other volunteers coordinate the dates and times when they will help with caregiving duties, such as preparing meals, providing rides or running errands. Anyone who wants to help can create an account, access the calendar and receive notification and reminder e-mails.
Share the Care
Area Agencies on Aging - Listed by State
Mather Lifeways Caregiving
Home Aides of Central NY, a division of the Visiting Nurses Association Homecare has been in existence for 45 years offers tips as well as access to home care services in the area.
New York City
Caregivers of New Jersey, an affiliate of the Family Resource Network, has a website to help connect residents to resources they may need.
Elder Options of Texas has good caregiving information.
Wisconsin Family Caregiver Support Program links to resources across the state.
Alberta Caregiver College in Edmonton offers instructional and training materials for caregivers. Links to other Canadian caregiver resources.
Canadian Caregiver Coalition is a bilingual (English and French) non-profit consisting of caregivers, support groups, researchers and national groups. Its purpose is to increase awareness and support. Good website.
Family Caregivers Network Society is another non-profit to help inform, support and educate caregivers. Guides for navigating the Canada Health System.
Center for Quality in Care
Caring for Carers website with information and access to services. Tel 065-686-6515
Sweden invests more of its GDP in the elderly than any other country in the world with homecare, transportation, daycare and family support services.
Carers UK based in London, provides extensive information for caregivers through its website and toll free (in the UK) Carers Line offers support material in a range of languages. Call 0808-808-7777 or email firstname.lastname@example.org
MEDLINEplus The National Institutes of Health's site for top-ranked information/news. It offers basic information on a disease, medical condition or treatment, or a drug.
http://www.Medicare.Gov is a 1-stop website with many databases on finding health insurance, doctors, nursing homes, hospitals, home health agencies, dialysis centers, drug plans, and suppliers of medical equipment and supplies. Click on these search tools below to access valuable Medicare-sponsored databases which measure performance against various quality measures.
International Association of Hospice and Palliative Care
A Place for Mom has been recommended by CFAD site visitors as a useful free referral service helping families find appropriate senior housing nationwide.
The Center for Excellence in Assisted Living is a national clearinghouse, bringing together research, practices, and policy that foster quality and affordability in assisted living.
The Guide to Retirement Living is published by our partner, Steve Gurney, It offers a comprehensive housing, home care and other resource locator with a total of 4,000 entries for Washington, D.C., metro area; New Jersey, Pennsylvania, and Delaware, updated quarterly
ILRU (Independent Living Research Utilization) provides research, education, and consulting for independent living and home and community based services under the Americans for Disability Act.
The Centers for Independent Living offers a national database.